Happy Thanksgiving everyone. I didn't think I'd see this one. Last year, I told my sister I didn't think I get to see another. I feel like crap but I'm still above ground.
Tomorrow is the last dose of chemo, providing the lab report supports the damages to my immune system. I just took a lab at another doctor's request and the numbers looked pretty good. I just look forward to the day I feel halfway normal again.
My oncologist decided to skip the last 3X dose of chemo. Now it's on to immunotherapy stating next week. There are 26 rounds total of Durvalumab. 1 every 2 weeks for a year.
Man, the hospital is making serious bank on these treatments. I wish I could say they are working. Truth be said, I actually feel a little worse every day. Thinking seriously about checking into cannabis therapy. I've lost 45 pounds from not having an appetite and need some non-opiate pain relief.
You're not going to believe this. I went in for my 1st immune therapy infusion and during the bloodwork recheck I happened to mention that I was getting a rash on my chest. The rash developed in less than 2 hours..............................shingles. This is all testing my resolve to be of a strong mental attitude. One damn thing after another and they all involve lots of pain. My treatment plan for the next year is imunochemo once every two weeks for a year. I seemed pretty mild as far as side effects. Shingles should be gone in 3-5 weeks barring lasting damage to nerves. Geeze! I have to take 16 caps of one medication per day and some big assed horse pill twice just for the shingles.
That's crazy that it took so long for your shingles to activate. Definitely sucks! You should 100% look into some cannabis therapy. It'll help with almost everything you're going through provided you get the right stuff!
I have to do something to battle the weight loss. I've lost so much body mass that I'm left weak and frail. I've never experienced this before. It's all I can do to get off the couch, go to the bathroom or kitchen then make it back to the couch. Almost every trip off the couch, I get so dizzy I can't remain standing.
Milkshakes Wiskas to put some weight on and some thc brownies. With you're weight loss they should kick in quick. Although I am not a sativa fan that would benefit you best if you want to keep going throughout the day.
Christ dude, you can't catch a break... Is the weakness from the weight loss? Is your throat feeling better?
My throat feels quite a bit better. But everything I eat feels super dry and unappetizing. My taste is off, everything tastes and smells like cancer. I swear I can smell the disease. The weakness is from low blood pressure and chronic dehydration as well as not getting nutrition. I'm forcing myself to eat at this point, but it's not enough. The doctors have me on a delicate balance of meds to keep my BP and a-fib in check. Now, on top of that I have 21 more pills a day I have to take for the shingles and some weird infection I got from a thoracentisis. The dizziness is what scares me the most. I'll get up, take a walk to the kitchen, then out-of-nowhere, I just about collapse. I've gone down several times. The strange thing is, it's not from suddenly getting up. It happens after I've moved around a bit.
Well. Things just went to worse. The last lifeline to longer life just seemed to evaporate. I've been cut off of the immuno therapy as of the second dose. My body is not tolerating it. Instead the drug is causing arthritis in my largest bones. The Chemo got replaced by a regimen of steroids. It's getting tougher to fight the good fight here. Time to cut a chunk off of the 100 mg block of gummy sitting before me. I does help with the pain....just a bit and definitely helps with the appetite.
Ugh. Real bummer man. I'm glad the edibles at least offer some respite from the pain and give you the munchies.
